Have your say on financial security & terminal illness 📝

The All-Party Parliamentary Group (APPG) on Hospice and End of Life Care is launching an inquiry looking into financial security for people with a terminal illness, and we want to hear from you! 

The APPG brings together MPs and Peers (Lords and Baronesses) from across the political spectrum to campaign for high quality and accessible palliative and end of life care for all. The group aims to raise awareness and promote the needs of adults and children living with terminal or life-limiting conditions, and their families and carers, in Parliament. The APPG is being managed by Marie Curie UK, Hospice UK and Sue Ryder - and together, we promote person-centred, evidence-based policies to improve end of life care in all settings, including hospices, hospitals, care homes, and in people's own homes.

If you have lived experience of financial hardship at the end of life - either directly or indirectly - we want your voice to be heard. 

Note: We recognise that financial security is about the relationship between costs and income - rather than just income, so when we refer to financial security we a person or group's abilty to meet regular and other necessary bills.

Have you, or a close loved one, struggled financially while living with a terminal illness?

Stories like yours help us campaign for change, because your words can make decision makers listen. So please take our short survey, and help us to make sure voices like yours are heard by decision makers:

Share your experiences

Do you have professional or policy experience related to financial security at the end of life?

If you provide care or support to terminally ill people or their loved ones, or if you have done research into this topic, your insights are really valuable. You can help shape our policy recommendations by taking part in our survey:

Have your say


The call for evidence will be open for eight weeks, and closes on Friday 20th June.

We are also accepting video and voice note submissions. If you would prefer to submit your thoughts in one of these formats, or in an alternative format (e.g. Word Document) please contact [email protected] to arrange this.